And we support a major expansion of the right to request a personal budget again we believe this underpins an empowerment of the individual citizen to have care and support appropriate to them.
We also propose that community based providers have the right to propose alternatives to inpatient care from commissioners. That means a clear and robust Charter of Rights and an effective Right to Challenge, backed by strong advocacy and support, that enables citizens to demand change. In tackling this challenge it became clear to me that we need both a major expansion of community delivery driven by better commissioning but also, crucially, the empowerment of people with learning disabilities and/or autism and their families. The role of the many voluntary and community organisations that both advocate for and provide services for people with learning disabilities and/or autism is crucial to that aim, as are the individuals themselves, their families, clinicians, managers and professionals across the health service and in local councils, who need to work together to achieve a dramatic turn-around. So we need a mandatory national commissioning framework that delivers that expansion, pooled budgets, and a focus on the individual s needs not the system boundaries.
Only by a big expansion of such community provision can we achieve a move from institution to community. In light of the need to achieve progress Simon Stevens, the CEO of NHS England, asked me to consider how we might implement a new national framework, locally delivered, to achieve the growth of community provision needed to move people out of inappropriate institutional care. Not only has there been a failure to achieve that movement, there are still more people being admitted to such institutions than are being discharged. It led to the Government pledge to move all people with learning disabilities and/or autism inappropriately placed in such institutions into community care by June this year. 1 WINTERBOURNE VIEW TIME FOR CHANGE Transforming the commissioning of services for people with learning disabilities and/or autism A report by the Transforming Care and Commissioning Steering Group, chaired by Sir Stephen Bubb 2014ģ WINTERBOURNE VIEW TIME FOR CHANGE Transforming the commissioning of services for people with learning disabilities and/or autismĤ Published in 2014 Designed and typeset by Soapboxĥ CONTENTS Foreword 6 Executive summary 8 About this report 12 The problem we are confronting 14 Where we are now 14 Where we need to get to 15 Why has there not been more progress? 17 Recommendations 20 Strengthening rights 20 Forcing the pace on commissioning 24 Closures 28 Building capacity in the community 31 Holding people to account 36 Appendix 1 37 Membership of the steering group Appendix 2 38 We have the right statement Appendix 3 40 Challenging Behaviour National Strategy Group Charter Appendix 4 42 Summary of Recommended Social Investment Structures from Winterbourne View and Social Investment (2014)Ħ 6 FOREWORD The Winterbourne View scandal, exposed by the Panorama programme, shocked the nation.
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